If you would like to know more about the Wilson's Disease Registry, or want to apply for access to the registry data, please contact us using the information below.
iWilson's Registry
Please get in touch if you would like to know about the registry, the work we do or to apply for usage of the registry data in your research.
If you have questions about the Wilson's Disease registry, or any of the work we do, please use the form below to contact us. Alternatively you can email us using the address below:
The Wilson's Disease Registry is a secure centralised database, sponsored and managed by Orphalan. It records health data on consenting people with Wilson's Disease (WD) throughout the world.