Interested in using the collected data or part of that for your research?
Request Data
If you would be interested in using the collected data, or part of the data, for your research, please submit your application and research proposal to the iWilson Registry Advisory Board using the form opposite.
Alternatively you can click the link below to email us.
The Wilson's Disease Registry is a secure centralised database, sponsored and managed by Orphalan. It records health data on consenting people with Wilson's Disease (WD) throughout the world.
